Resources
Financial Assistance
Patient Advocate Foundation – HUS Disease Fund The Patient Advocate Foundation provides financial assistance for families managing the costs of Hemolytic Uremic Syndrome treatment. This fund supports those who qualify based on income guidelines.
Grief Support for Families Who Have Lost a Child
Losing a child is an unimaginable pain. David Kessler, one of the world’s foremost experts on grief, lost his own 21-year-old son and has dedicated his work to helping others navigate profound loss. Below are resources from his work that families may find helpful:
Grief.com – David Kessler’s website with articles, resources, and support for all types of grief
Tender Hearts Grief Support Groups – Virtual support groups for those grieving
Finding Meaning After Child Loss Course – An online course specifically for parents who have lost a child
The Mel Robbins Podcast: Grief, Heartbreak & Finding Hope – A conversation with David Kessler on moving through grief
TED Talk: How to Find Meaning After Loss – David Kessler shares insights on discovering meaning in the midst of grief
Finding Meaning: The Sixth Stage of Grief – David Kessler’s book introducing a transformative sixth stage of grief beyond acceptance
Hear Their Stories
